Recently my son was diagnosed with something called brachycephaly and plagiocephaly. In simple terms it means he suffers from “flat head syndrome.” Ever since the “Back To Sleep” program was created in 1994 to reduce the risks of SIDS (sudden infant death syndrome) more and more babies are getting this condition. In the first several months of their lives babies are put to sleep on their back. Their little skulls are so soft and malleable that sometimes it creates a flat head in the back. The condition can be corrected with something called a cranial remolding orthoses. It looks like a little helmet and it helps provide a pathway to more symmetrical skull growth.
After noticing my son Brenner had a flat spot in the back, I took him at 5 months old to a place called Cranial Technologies. They make what’s called a DOC Band helmet. They took photos of my son and then explained to me that Brenner had both brachy and plagio happening. His head was starting to grow up and not back. Always trying to see the humor in everything from this point on I started calling him Megamind after the animated character played by Will Ferrell. Brenner didn’t mind.
I wasn’t convinced that I wanted to confine my little boy to this contraption for several months. First, because he was so alert and so active I was afraid he would hate it and try and rip it off. Second, because let’s be honest people can be cruel. Just read the comments on pretty much every blog ever written! Our society loves to tear people down, even babies. I was dreading having to take my son out to the grocery store and the mall and have to hear people make stupid, inappropriate comments asking what was wrong with him. Selfishly I thought “it’s hard enough being a single parent. Now I have to deal with this too!”
As a society we are not very well versed in “flat head syndrome.” So, despite it being very common most people don’t’ know why kids have to wear these helmets. I know I certainly did not know what they were for when I would see a baby with one. I figured either something was wrong with the kid or the parents were super over protective. And this is what I was afraid other people would think. Babies are resilient. Parents are not. We get our feelings hurt and we feel terrible when our child has to do something that we think would feel uncomfortable.
Well, after waiting two months and hoping the flatness would work itself out, It didn’t. So back to Cranial Technologies we went. Brenner took photos again and the clinician showed me how not much had changed. So, I left knowing I had to make a decision. I was completely torn about what to do. I’m a big believer in signs though and that same night I ran into a couple at Costco whose daughter was wearing a helmet. She had gotten hers late as well at eight months. They prefer babies get them around 4 or 5 months. The baby’s mom told me she didn’t’ want to get it for her daughter for all the same reasons as me. However, it was a blessing in disguise to them because at ten months their daughter started walking and climbing and she would hit her head a lot and the helmet saved her from getting any injuries. Once I heard that I was in.
We picked up Brenner’s helmet yesterday. I was ready to start crying the minute it got put on his head. Except that something unexpected happened. Brenner didn’t make a peep when it went on or while it was on at all. It was like nothing different had happened. He just went about playing and crawling around exactly the same as he had ten minutes before. I still thought he looked cute in his little helmet. So the tears never flowed.
Now, Brenner is a stomach sleeper and the clinician didn’t want him to sleep overnight with it just yet to make sure his skin can handle the helmet. It can sometimes irritate the skin. So, that will be the true test when we get to that point and he has to try and sleep with this thing on. After that he will wear it for 23 hours a day (with one hour off to clean).
Lots of kids with helmets have them painted or put stickers on them to make them look better. Next week I am having Brenner’s painted to look like a Steelers helmet since I am from Pittsburgh originally. At least it will be a conversation starter. Perhaps I will have him walk around with a terrible towel too!
If you have any stories to share about Plagio or Brachy with your child please tweet me at @midlifemommies. I’ll be updating Brenner’s journey as often as I can here.

